This site/blog explains everything about Raynaud's Phenomenon in normal human language,
no sophisticated and scientific words, but everything discussed here have a scientific base.

This blog is created, in the hope that it will help the people affected by this disease.
Kindly use "Index" for a better experience. (Given on right hand side.)

Friday, February 06, 2015

Raynaud's Awareness Week / Month February 2015

Just like every year since 2011, I have yet again hosted an awareness week cum month for Raynaud's Disease in February, with help of my extraordinarily energetic, and charming friends.

As every year, this event is hosted only on facebook. It is common knowledge now, that almost every person who uses internet has an account on facebook. So, even though we are hosting the event only on facebook, we believe that we can reach to huge number of people, and let them know about the Raynaud's, without spamming, and without irritating any user of facebook. :-D :-)

Through out the February 2015, the awareness month for Raynaud's, we will be sharing general knowledge, common signs/symptoms, tips, precaution, and many more about Raynaud's Phenomenon / Disease / Syndrome, in plain and simple English language. With the hopes that these posts would reach the highest number of facebook/internet users.

The following is a sample photograph from many which we are going to share. This photo has been shared for 300+ times over the two years (excluding downloading, and then sharing), from my personal facebook profile.
The number of shares shown below, is the number of the posts which are "public". If somebody shared the photo, but chose the privacy to "friends only", then his share is not counted here.





Here are the links of the facebook event for Raynaud's Awareness Month / Week 2015 (February), and the facebook group respectively:

https://www.facebook.com/events/622530997850743/

https://www.facebook.com/groups/raynauds/

Warm Regards,
Kiran Nayak :-)

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Monday, March 12, 2012

Some Of My Own Conclusions

            The following conclusions are based on my study of Raynaud's, lots of case studies, and real-time experiences of other patients and my own. These conclusions have a base of these observations, plus a little bit of hunch. So these conclusions should not be taken for granted. I've posted (and I constantly add) confirm conclusions here: "Our Observations".

  • Persons from India, and China are more likely to have Raynaud's in upcoming few years.
  • Most of the patients with Raynaud's are emotionally sensitive.
  • Most of the patients with Raynaud's have an above average IQ.  
  • Its either that emotionally sensitive persons are more prone to Raynaud's, or Raynaud's makes them emotionally sensitive. Same conclusion can be made with IQ.
  • (From my own survey) Most of the patients with Raynaud's stay active/fresh during the night time than day time.


The conclusions would be updated from time to time.
Till then,

Best Regards,
Kiran :)
 

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Tuesday, February 14, 2012

The Symptoms

As I have mentioned for several times before, no two cases of Raynaud's are completely same.
Every case tends to be different than other. It makes every case unique.
But luckily the symptoms are usually common. One can categorise the symptoms according to the severity of the Raynaud's.

  • The first symptom is hands (or affected part) becoming colder than usual.
  • The second symptom is skin discolouration* upon cold exposure. (This discolouration varies according to the severity. Please see the footnotes for more details.)
  • The patient also experience mild tingling* and numbness* of the affected part(s) that will disappear once the colour returns to normal.
  • If the discolouration takes place for a little longer, lack of oxidation takes place in the discoloured area. That might cause pain.
*I have explained the complete scenario (including the different colours included in discolouration) of a an episode of Raynaud's phenomenon in following post, it will help you to understand about Raynaud's and its symptoms more clearly.:


Warm Regards,
Kiran :)


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